Working group Participation
Patients of all ages receive medical care in the general practitioner’s office, which is the place where the prevention, diagnosis, treatment and follow-up of medical conditions is performed. As an increasing number of patients are chronically ill or have several medical conditions, diagnostic and therapeutic options are also becoming increasingly diverse and complex. Evidence-based answers to the questions facing general practitioners are important to the success of the shared-decision making process, but research results generated in controlled specialty settings are only partially transferable to patients in real-world practices. Practice-based research networks serve as a bridge connecting the worlds of policy and academia to the “real world” by translating research ‘from the ivory tower to the village green’ (Chris van Weel) and providing an important laboratory for encouraging collaborative research partnerships between academicians and practices or communities.
The perspectives of patients, practice staff and general practitioners are crucial to ensuring that research is feasible. To achieve this, strategies to encourage the participation of patients and practices are shared, discussed and developed in this working group. As the process unfolds, the practicability of different concepts will be evaluated, resulting in a common guideline for the Initiative.