What is meant by patient involvement?
Patient involvement means that you, as a patient and citizen, can contribute your interests and opinions. In this way, you help determine what research looks like and how it is implemented.
Why are patients involved in practice-based research networks?
Through the involvement and co-determination of patients and citizens, research projects in general practices are to be aligned with the needs and interests of patients. This increases the relevance of research projects.
It is also intended to ensure that important findings from GP research also reach the general population.
How are patients involved?
As a patient or citizen, you can participate in research in different ways:
- As a consultant, you can provide helpful advice on which research topics are interesting from the patient’s point of view or participate in the development of questionnaires, interview guidelines, and study information.
- As a co-researcher, you can help to approach other patients to participate in a study, collect data or interpret results.
- As a co-author, you can help to formulate study results in a generally understandable way and to disseminate them to the population via suitable communication channels.
By contacting the practice-based research network in your region, you can find out about the patient involvement options they provide.
An overview of the practice-based research networks and the relevant network contacts for patient involvement is shown below:
Contacts for participation:
This map shows the practice-based research networks of the Initiative DESAM-ForNet.
Bavarian research network for general practice
Research Practice Network Baden-Württemberg
North-Rhine Westphalian General Practice Research Network (HAFO.NRW)
Research Practices Halle-Leipzig
Research Practice Network East
Practice-Based Research Networks Dresden/Frankfurt am Main
★ Site of a network consortium leader
● Further general practice network sites
⊙ Non-general practice network sites
■ Associated partners in the DESAM-ForNet Initiative
▲ Universities with a general practice research institute
Here you can find the contacts for patient involvement in your region.
RaPHaeL – Research Practice Network Halle-Leipzig
Dr. Alexander Bauer
For further questions, please contact the coordination office!